For anyone suffering from this terrible disease and those who love them, here is some promise and hope to find a cure.

February 23, 2016
An UPDATED Note from Dr. Mary Newport
It has been nearly 8 years since Steve improved with coconut oil. He improved very significantly and steadily the first year and remained stable for 2 more years. He began having seizures in summer 2013 starting with a head injury from a fall and did not fully recover. In spite of this serious setback, I feel it was well worth the extra quality time that we had together as a family.

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